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For the entire family, parenting a child with a chronic disease can be difficult. Anger, despair, and dread, along with invasive medical procedures, prescription side effects, and interruptions to family routines, can create a volatile environment at home. It’s easy to let bad conduct and emotional outbursts slip when you’re dealing with the stress and pressure of chronic illness. Children with chronic illnesses, like other children, benefit from clear boundaries, regular punishment, and high behavioral standards. Maintain open lines of communication. Understanding your child’s sickness will enable you to not only set realistic expectations for him or her, but also to reply to any questions they may have in a language they can understand.
Maintain a consistent routine. If your child’s and family’s daily schedule is predictable and constant, they will function better. Make sure your child goes to bed, gets up, and eats nutritious meals on a regular basis.
Establish behavioral expectations and guidelines. Setting explicit expectations (“You must clean your room before playing outside”) and imposing severe limitations (“You may not go outside until you finish cleaning your room”) will help your youngster behave better. Allowing your child to make decisions as much as possible will help them develop independence and confidence. Your child will grow up to be emotionally well adjusted and successful in managing their chronic disease if you set clear expectations and strict limits.
Maintain a high level of discipline at all times. Discipline your child in a way that encourages him or her to act in a responsible manner on a consistent basis. Encouragement (“You did a wonderful job remembering to take your medicine this morning!”) and praise (“You feel so much better throughout the day when you remember to take your medicine in the morning!”) should be given frequently. Younger children may benefit from timeouts, whereas older children may benefit from the loss of privileges.
It is important to urge patients to stick to their treatment plans. Your child’s health will be threatened if he or she does not follow the treatment plan. Clear and simple explanations, praise and encouragement, suitable limitations, and regular penalties can all help your child stick to the treatment plan.
Power struggles should be avoided at all costs. Your child may feel unable to control even the tiniest of things because he or she suffers from a chronic illness. In an attempt to gain control over their surroundings, your child may act out in an inappropriate manner (throwing temper tantrums, refusing to take medication, staying out past curfew). You may empower your child by allowing him or her to make decisions whenever possible.
Make certain you’re looking after yourself. It is critical that you take care of yourself in order to adequately care for your child. Maintain a healthy sleeping and eating routine. Enlist the help of family and friends. By enhancing your emotional and physical health and teaching your child how to ask for help when they need it, self-care can help you be a better parent.

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